About Me

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Im 41..married to Bob..we have 4 kids..Chris 25, Nick 20, Mitch 18 & Tori 15

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Story continued..

..July 3rd,07 was the day it all began.. unbearable neck pain..so after many dr appointments..I finally was able to see the drs with the answers at The Chiari Institute in Long Island NY..I was dx with Arnold Chiari Malformation,Syringomyelia, Ehlers-Danlos Syndrome, and Tethered Cord Syndrome..I also found I have herniated discs,buldging discs, Degenerative joint disease in my entire neck,cervical lordosis, spinal stenosis, valvular regurgitation in the tricuspid and mitral valves..this all hit me like an impossible nightmare..but it was a life that I had to make a decision to embrace..I want other chiarians to know that although there are not many of us out there..we all need each other to cheer us on.. some of us have great family and friends to support us..but there are still many of us who dont.. I have a supportive husband.. who see's how the headaches stop me in my tracks..or the neck pain that puts me on the couch with the heating pad..numbness..earaches and many other obsticles I have to overcome each day..many of my family and friends dont understand how it is in my shoes..Im here to share MY Story , highs and lows, information I dig up and offer support to people who need it...

Thursday, October 2, 2008


This is Chris,her son.I've never been on here but ill try my best with what and how her surgery went.She went in on Tuesday the surgery was about 5 or 6 hours long.At first she didnt need the decompression** but they realized when they were in they needed to do it.She also had the rods put in which went from the back of her skull down her spine which I believe was screwed into C4,C5,and C6.My dad is going down today(Thursday) to see how she is doing cause she hasnt really been able to talk on the phone but like 10 minutes with us.So i'll try my best to keep everyone posted on here and she should be back home this weekend if all goes well.


lace1070 said...

Hey Chris ~ thanks for posting and keeping us updated ~ look forward to hearing more ~ give your mom a big hug for me when she gets home ~ Lace

Dan and Tina said...

Hi Chris,

Please tell your mom she's in my prayers.

Take care,

Chiari Interview