About Me

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Im 41..married to Bob..we have 4 kids..Chris 25, Nick 20, Mitch 18 & Tori 15

Me Brain

Me Brain

Story continued..

..July 3rd,07 was the day it all began.. unbearable neck pain..so after many dr appointments..I finally was able to see the drs with the answers at The Chiari Institute in Long Island NY..I was dx with Arnold Chiari Malformation,Syringomyelia, Ehlers-Danlos Syndrome, and Tethered Cord Syndrome..I also found I have herniated discs,buldging discs, Degenerative joint disease in my entire neck,cervical lordosis, spinal stenosis, valvular regurgitation in the tricuspid and mitral valves..this all hit me like an impossible nightmare..but it was a life that I had to make a decision to embrace..I want other chiarians to know that although there are not many of us out there..we all need each other to cheer us on.. some of us have great family and friends to support us..but there are still many of us who dont.. I have a supportive husband.. who see's how the headaches stop me in my tracks..or the neck pain that puts me on the couch with the heating pad..numbness..earaches and many other obsticles I have to overcome each day..many of my family and friends dont understand how it is in my shoes..Im here to share MY Story , highs and lows, information I dig up and offer support to people who need it...

Tuesday, September 23, 2008

Conquer Chiari Walk Across America Albany Ny

My husband, children, Sam (my son's girlfriend), Nancy (a woman I met locally that has CM) and myself attended the walk in Albany NY. It was awesome to see so many people together that know what Chiari is! We had over 200 people walk and $6000 raised. (not including online donations and sponsors!!!! Im amazed at how much money was raised. I would love to find out how much was raised from all the walks.

I was also able to meet someone I had been talking to online for quit some time. She is a sweetheart! She is going to ride with us to the chiari meeting in CT this Sunday.
Cant wait for next year!

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Chiari Interview