About Me

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Im 41..married to Bob..we have 4 kids..Chris 25, Nick 20, Mitch 18 & Tori 15

Me Brain

Me Brain

Story continued..


..July 3rd,07 was the day it all began.. unbearable neck pain..so after many dr appointments..I finally was able to see the drs with the answers at The Chiari Institute in Long Island NY..I was dx with Arnold Chiari Malformation,Syringomyelia, Ehlers-Danlos Syndrome, and Tethered Cord Syndrome..I also found I have herniated discs,buldging discs, Degenerative joint disease in my entire neck,cervical lordosis, spinal stenosis, valvular regurgitation in the tricuspid and mitral valves..this all hit me like an impossible nightmare..but it was a life that I had to make a decision to embrace..I want other chiarians to know that although there are not many of us out there..we all need each other to cheer us on.. some of us have great family and friends to support us..but there are still many of us who dont.. I have a supportive husband.. who see's how the headaches stop me in my tracks..or the neck pain that puts me on the couch with the heating pad..numbness..earaches and many other obsticles I have to overcome each day..many of my family and friends dont understand how it is in my shoes..Im here to share MY Story , highs and lows, information I dig up and offer support to people who need it...

Tuesday, June 23, 2009

Summer is here


Its almost my 2 year anniversary for when this all began... July 3,2007. As I look back at the last 2 years..Iam amazed at all I (and my family)have been through. This has been an era that has changed my life forever. I often find myself thinking of how my life will be in the future...how it was in the past..and how I live in "Today".
I wouldn't trade the experience's I have been through for anything in the world. They have shaped me into a better person. I have made many friends along the way..some of which I know are life long.
Since my last post I had shoulder surgery...June 5th. It was not what I expected. I had rotator cuff damage, torn superspinatus (2 cm), laberal tear & a cyst in my bicep tendon. He also performed stabilization surgery on the capsule for instability. I have to wear the sling for 6 weeks & I start physical therapy after the 3 weeks. I have 4 pages of instructions for pt...it is very detailed instructions on phases of range of motion with degree's of movement...minimum of 20 weeks. Iam slowly progressing.
I finally recieved 1 of the narrative medical reports for my workers compensation case. Its very humbling to read a breakdown about your health. Iam looking forward to just getting the process started. After everything is filed..it is in my lawyers hands. My medical bills are mounting..so Iam hoping to get it settled before I have to pay it in its entirety.
Iam coming to the realization that I may not be able to go back to school. Even if Iam able to take one class at a time..what exactly will I be able to do that fits within my limits. This is hard for me to accept. I really want to become a licensed mental health counsler. Iam worried that even if Iam able to complete the required classes..how would I be able to be reliable for the people I would treat. Iam just going to pray about it..and wait to see what the future will bring.
Iam attending a chiari meeting this Sunday..looking forward to meeting new fellow cmers. Iam going to look into setting up a monthly chiari meeting in my area.I have found 10 of us locally!! I think its important to have a support system that can relate to what you are going through. This will also give me something to keep me busy in my free time...you know..between..doctor's & pt...
I hope everyone is having a pain free day!!!

Chiari Interview