Today I went to The Chiari Institute. I developed a lump on my head.. towards the top..where the rod ended. It is sore and mushy. I didnt have a fever and it wasnt red. I also have had a rough couple of weeks. I have experienced some major headaches. Also some very bad dizziness..but only with movement. I had dizziness before surgery, but I could be sitting still and have it. When I get dizzy..I also blackout. I have to hold on to something until it passes. I have had issues with
It didnt help matters when I was unable to get one of my doctors at TCI to call me back. I was very frustrated..to say the least. I have never had this problem with tci before. I saw Dr Verma today. As you can see.. Im sporting my new hardware in my xrays from today.
Well Dr Verma informed me that everything is healing well. That the lump is just a reaction from the foreign object (rod). That it will get better.. hopefully. If it continues to be bothersome..we could try injections. He doesnt feel it will get to that. The dizzines, sleeping issues, headaches,ect... are all still from the chiari/kinked brainstem. Even though the surgery released the pressure off my brain.. he explained that it has been like that for a long time. It could take up to a year to see the final results. I knew all this going into it. The problem Im having with that..is I felt better for the first four weeks after surgery...then I do now. I have been on the couch for 2 weeks..with the heating pad...taking pain meds/muscle relaxers on a regimen again... my neck is stiffer than a board. I had more range of movement at 4 weeks postop..than I do now. Its like Im in reverse. Today is 7 weeks postop. I know Im being impatient. Its very hard to keep patient when going through something so life altering.
Iam going to physical therapy 2x a week and Im getting a massage from my chiropractor once a week. Which does seem to help. So Im back to the waiting game "AGAIN". Except this is it...I have done everything they have ask me to try. I have exhausted all options.
I'am going to have to make a concious decision and let go. I cant control this. There is nothing else for me to do. I have decided to put this in Gods hands. He is the only one that can change the outcome.
We started going to church again a few weeks ago. I love going to church. It makes me feel more connected to the Lord. I realize now that he wants me to let go. He cant do any works in my life if Im always holding on..trying to do it myself. So I have decided to do what I can around the house.. enjoy what ever Iam able to do..day by day... and use the time Iam couch bound wisely. I feel now that I have wasted too much of my life by always rushing around. I cant wait until the weekend...I cant wait until next summer... I cant wait for my kids to get out of school... I cant wait..I cant wait.... I now have to wait...slow down... When you slow down..you notice more details about your life. Im begining to think that the details are what is important in Life. We all have goals ..achievements .. mile stones... I think its the journey we have traveled to get there that is what matters. The "how"..not the "what".
So in the coming days, weeks, months.... Iam looking forward to see how God is going to guide me, encourage me, restore me, heal me, bless me and show me how wonderful it is to not be the driver... but a passenger along for the ride.