About Me

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Im 41..married to Bob..we have 4 kids..Chris 25, Nick 20, Mitch 18 & Tori 15

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Me Brain

Story continued..

..July 3rd,07 was the day it all began.. unbearable neck pain..so after many dr appointments..I finally was able to see the drs with the answers at The Chiari Institute in Long Island NY..I was dx with Arnold Chiari Malformation,Syringomyelia, Ehlers-Danlos Syndrome, and Tethered Cord Syndrome..I also found I have herniated discs,buldging discs, Degenerative joint disease in my entire neck,cervical lordosis, spinal stenosis, valvular regurgitation in the tricuspid and mitral valves..this all hit me like an impossible nightmare..but it was a life that I had to make a decision to embrace..I want other chiarians to know that although there are not many of us out there..we all need each other to cheer us on.. some of us have great family and friends to support us..but there are still many of us who dont.. I have a supportive husband.. who see's how the headaches stop me in my tracks..or the neck pain that puts me on the couch with the heating pad..numbness..earaches and many other obsticles I have to overcome each day..many of my family and friends dont understand how it is in my shoes..Im here to share MY Story , highs and lows, information I dig up and offer support to people who need it...

Friday, October 10, 2008

Today I was able to get my stitches out.. I will actually be able to take a regular shower on Sunday!!!!!! This is my scar 10 days post op. My neck still feels very stiff and sore. I know patients is a virtue. Im so anxious to see what the end results will be.

My friend Lisa wants to see what the front of my head looks like.. so here it is.My oldest son Chris..says I look like one of the spice girls. Not really what I would like to resemble at 35. But it is out of my eyes and off my incision.

This has by far been the hardest surgery of them all. But with Gods timing..Im sure it will be the most worth it. You always have to pay the most for something that is worth the most.
I start pt in a couple weeks..and then after the holidays I will follow up at TCI and schedule a consult with yet another orthopedist for my shoulder. So Im hoping January will be the month to get that fixed.
I have been praying and thinking of a few friends that are going through their own set of battles. Please pray for their pain to be relieved ,their faith to stay strong, and to find renewed strength and courage for tomorrow.... Keesha, Lisa, Rose, Lacie, Laura, Laurie, Caroline, Nancy, Erika, Alison, Amy joe, April, including all those who suffer from chronic pain.
Be Well


lace1070 said...

Clearly you are channeling princess leah ~ Still playing phone tag with ya ~ will catch up with u soon ~ I can't believe how fast your hair is growing back in ~ looking good. hugs ~ Lace

Laurie said...


You are one brave woman and beautiful too! I can't believe those pictures are only 10 days post-op. You look great, although I do know looks can be deceiving, but I hope that is not the case.

Wishing you a speedy recovery!


Sarah Angelini said...

This is so inspirational, Thank you for making me feel a little less alone!

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