Well...its getting closer. I went to CT today to meet with the Chiari of CT group. Two of my friends in NY car pooled with me to the meeting. Lacie from Albany and Nancy from Port Jervis. It turned out to be a nice day..considering the rain. I enjoyed meeting some new people at the meeting..and also seeing my friend Lisa from CT. She has evolved into my Chiari Sister..we talk almost daily.
I cant believe tomorrow is the 29th! I have to be in LI at 8am for 2 CT's, then preop registration and testing at 10am. I have an appointment with Dr Verma at TCI in the afternoon. My son, Chris and his girlfriend, Sam.. are going with me. We are meeting a couple of people for lunch. They are visiting from Indiana. Both are here for their first consult at The Chiari Institute. So the questions about TCI's proceedures are endless. I dont mind..thats what Iam here for. If I can ease someones mind by answering a few questions, then so be it. That is when I feel like there is a reason for having all these of the wall disorders.
Well Im going to try and get some sleep... I have an early morning. I want to say Thank you to everyone for all your prayers, support, concern and comforting words of kindness. It means a great deal to me.
About Me
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- Dee Hall
- Im 38..married to Bob..we have 4 kids..Chris 22..Nick,17..Mitch,14..Tori,12..
Me Brain
Story continued..
Me and hubby..Bob
Links
- Interview with GOD
- Weather aches & pains tool
- An Uplifting Message of Comfort for Those Who are Down
- The Chiari Institue
- TCI videos on SM/CM/EDS/TCS and more
- Chiari Malformation Symptom list
- Chiari Malformation & Syringomyelia 101 by Dr Oro
- World Arnold Chiari Malformation Association
- Conquer Chiari
- Anterior Cervical Discectomy w/Fusion
- Redefining Chiari Malformation the study
- American Syringomyelia Alliance Project
- Coping with Chiari Malformation & Syringomyelia
- Your Heart and Chiari
- Dr Francomano GBMC
- Ehlers_Danlos syndrome: definition from Answers.com
- EDS today
- Ehlers-Danlos National Foundation
- Tethered Cord Syndrome
- Valvular Regurgitation
- The World ACM Association U.S. doctors page
- Dysautonomia Information
- 25 Stress Relievers
- Perscription checker
- Cafe' Express Chiari Awareness items
- Social Security Disability
- But You Look Good
- Medical ID card
- The Acti pain patch
- Green Planet
- Centre for Alternative Technology Online Shopping
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1 comment:
I hope all things went well today with your pre-op stuff. No doubt you will be up late tonight. *SIGH* wishing you sweet dreams during surgery and a cool roomie in recovery ~ wish I was there in my journey getting this jurassic surgery done, too! All in due time, right? Know that you will be in my prayers ~ big hugs ~ talk with you soon :) Lace
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