About Me

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Im 38..married to Bob..we have 4 kids..Chris 22..Nick,17..Mitch,14..Tori,12..

Me Brain

Me Brain

Story continued..


..July 3rd,07 was the day it all began.. unbearable neck pain..so after many dr appointments..I finally was able to see the drs with the answers at The Chiari Institute in Long Island NY..I was dx with Arnold Chiari Malformation,Syringomyelia, Ehlers-Danlos Syndrome, and Tethered Cord Syndrome..I also found I have herniated discs,buldging discs, Degenerative joint disease in my entire neck,cervical lordosis, spinal stenosis, valvular regurgitation in the tricuspid and mitral valves..this all hit me like an impossible nightmare..but it was a life that I had to make a decision to embrace..I want other chiarians to know that although there are not many of us out there..we all need each other to cheer us on.. some of us have great family and friends to support us..but there are still many of us who dont.. I have a supportive husband.. who see's how the headaches stop me in my tracks..or the neck pain that puts me on the couch with the heating pad..numbness..earaches and many other obsticles I have to overcome each day..many of my family and friends dont understand how it is in my shoes..Im here to share MY Story , highs and lows, information I dig up and offer support to people who need it...

Tuesday, August 26, 2008

Scheduled the CCF..

Well..I just recieved a phone call from TCI..Iam scheduled for Cranial Cervical Fusion w/Duraplasty September 30th. I have one month to get all my ducks in a row....
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1 comment:

lace1070 said...

wow ~ that is soon! I will keep you in my prayers as you prepare for surgery and a speedy recovery! Hugs ~ Lace

September 3, 2008 at 7:33 AM

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